Tools and Resources

Introduction
How to get answers to basic questions and where to turn for help are some of the most common concerns for people with fertility-related issues and their loved ones. This Resource Directory may assist you in these efforts.

This directory provides you with contact information for organizations that may be able to provide you with some of the information you need to help you make the best choices about your treatment. These resources may help enable you to understand your situation and empower you to feel more in control.

The directory includes national organizations, many of which have local chapters that provide support services in your community. You can contact most of these organizations by telephone, mail, or on the Internet.

The services listed in this directory will not replace the care that you or your loved one receives from health care professionals. By educating consumers and family members like you about reproductive and fertility problems, these resources may make the relationship with a health care professional more productive while providing additional information and services.

Use this directory as a starting point for getting the support and information you need.

About the Internet: This directory provides you with Internet sites that are sponsored by government agencies or are well-known and credible national organizations. Surfing the Web can be fun and informative. The Internet also allows you to find information anonymously, without giving your name or address to anyone.

But when looking at Internet sites, remember that the information can be sponsored by anyone. Take into account the sponsoring group or individual when gathering information or help. You may not agree with their point of view. Also chat rooms are usually not censored or monitored, so be cautious. Be especially careful about giving out personal or financial information.

If you don't own a computer or know how to use the Internet, don't despair. Ask a friend or relative with Internet access at home or work to help. Also check out your local library or adult education center. Many have computers and will allow you to explore the Internet for free or a small fee. Once there, most Internet sites let you print out information.

Learn more about surfing the web:

Guide to Healthy Web Surfing – a resource from the National Library of Medicine


ORGANIZATIONS & RESOURCES

American Academy of Family Physicians: Online Brochures
A set of easy-to-read brochures and handouts that provide information about infertility and related conditions:


American Association of Sex Educators, Counselors and Therapists
This association represents a wide range of health professionals who are interested in promoting understanding of human sexuality and healthy sexual behavior. The side provides information about sexual dysfunction as well as access to certified sexuality educators, counselors or therapists in your area.

American Association of Sex Educators Counselors & Therapists
PO Box 5488
Richmond, VA 23220
Email: aasect@aasect.org
Web Site: www.aasect.org


American Association for Marriage and Family Therapy

This nonprofit organization represents marriage and family therapists. These therapists treat a wide array of mental health disorders, including marital stress and relationship problems. Therapists also can work in collaboration with doctors when medical treatment is needed. This organization can help you find a marriage and family therapist in your area.

American Association for Marriage and Family Therapy
112 South Alfred Street
Alexandria, VA 22314
703-838-9808
Web Site: www.aamft.org


American Diabetes Association
The American Diabetes Association is a nonprofit health organization providing diabetes research, information and advocacy. The ADA offers many free publications for people with diabetes, including several brochures and articles on men's sexual health.

American Diabetes Association
1701 North Beauregard Street
Alexandria, VA 22311
800-342-2383
Email: AskADA@diabetes.org
Web Site: www.diabetes.org


American Foundation for Urologic Disease

The mission of the American Foundation for Urologic Disease is the prevention and cure of urologic disease, through patient education, public awareness, research and advocacy. The foundation site provides information about erectile dysfunction.

American Foundation for Urologic Disease, Inc.
1000 Corporate Boulevard, Suite 410
Linthicum, Maryland 21090
800-828-7866
Web Site: www.afud.org


American Society for Reproductive Medicine
The American Society for Reproductive Medicine (ASRM) is an organization devoted to advancing knowledge and expertise in infertility, reproductive medicine and biology. The Society supports and sponsors educational activities for the public and continuing medical education activities for reproductive medicine professionals.

American Society for Reproductive Medicine
1209 Montgomery Highway
Birmingham, Alabama 35216-2809
205-978-5000
E-Mail: asrm@asrm.org
Web Site: www.asrm.org


Center for the Evaluation of Risks to Human Reproduction

The Center for the Evaluation of Risks to Human Reproduction web site is a resource for the latest information about potentially hazardous effects of chemicals on human reproduction and development.

Dr. Michael D. Shelby
NIEHS EC-32
P.O. Box 12233
Research Triangle Park, NC 27709
919-541-3455
E-mail: shelby@niehs.nih.gov
Web Site: http://cerhr.niehs.nih.gov/


Centers for Disease Control and Prevention: Diethylstilbestrol Update

Diethylstilbestrol (DES) is a drug once prescribed during pregnancy to prevent miscarriages or premature deliveries. In the U.S. an estimated 5 to 10 million persons were exposed to DES from 1938 to 1971, including pregnant women prescribed DES and their children. Health risks associated with DES exposure include reproductive disorders and infertility. You can use CDC's DES Update to learn more about DES exposure and what you can do about it.

CDC's DES Update
Centers for Disease Control and Prevention
4770 Buford Highway, NE Mailstop F-29
Atlanta, GA 30341-3724
888-232-6789
E-mail: ncehinfo@cdc.gov
Web Site: www.cdc.gov/DES/consumers/index.html


Centers for Disease Control & Prevention—Division of STD Prevention

The Division of STD Prevention, at the Centers for Disease Control and Prevention, provides research and support of services to prevent sexually transmitted diseases (including HIV infection) and their complications such as infertility, adverse outcomes of pregnancy, and reproductive tract cancer. The site offers facts sheets about common STDs.

National STD Hotline: 1-800-227-8922
Web Site: www.cdc.gov/nchstp/dstd/dstdp.html


Collaboration to AdoptUSKids

AdoptUSKids.org is a national photo listing service for children awaiting adoption across the United States. You may "Meet the Children" without registering or become a site member to learn more about the child and to contact the case worker. The Collaboration is a project of The Children’s Bureau, part of the Federal Department of Health and Human Services.

The Adoption Exchange Association
8015 Corporate Drive, Suite C
Baltimore, MD 21236
888-200-4005
E-mail: info@adoptuskids.org
Web Site: www.adoptuskids.org


Endometriosis Association

The Endometriosis Association is a self-help organization dedicated to providing information and support to women and girls with endometriosis, educating the public as well as the medical community about the disease, and conducting and promoting research related to endometriosis.

Endometriosis Association
8585 N. 76th Place
Milwaukee, WI 53223
800-992-3636
Email: endo@endometriosisassn.org
Web Site: www.endo-online.org


Endometriosis Research Center
The Endometriosis Research Center (ERC) was founded to address the growing need for disease research, education, awareness and patient support regarding endometriosis. The ERC site provides information about the condition and access to local support groups for women.

Endometriosis Research Center
630 Ibis Drive
Delray Beach, FL 33444
800-239-7280
Web Site: www.endocenter.org


Hormone Foundation

The Hormone Foundation is an independent, nonprofit organization established by The Endocrine Society. Its mission is to serve as a resource for the public by promoting the prevention, treatment and cure of hormone-related conditions, and does so through public outreach and education.

The Hormone Foundation
8401 Connecticut Avenue, Suite 900
Chevy Chase, MD 20815
800-467-6663
Web Site: www.hormone.org

The following information from the Hormone Foundation may be of special interest to couples with infertility:


InterNational Council on Infertility Information Dissemination

The InterNational Council on Infertility Information Dissemination (INCIID) is a nonprofit organization that helps individuals and couples explore their family-building options. INCIID provides information and support regarding the diagnosis, treatment, and prevention of infertility and pregnancy loss, and offers guidance to those considering adoption or childfree lifestyles.

The InterNational Council on Infertility Information Dissemination, Inc.
P.O. Box 6836
Arlington, Virginia 22206
703-379-9178
E-mail: INCIIDinfo@inciid.org
Web Site: www.inciid.org


March of Dimes

The March of Dimes helps pregnant women know what to worry about and what not to worry about when it comes to having a healthy baby. Through the organization’s Pregnancy & Newborn Health Education Center women can get free one-on-one, confidential answers to their questions about pregnancy, preconception, newborn screening and related topics.

March of Dimes
1275 Mamaroneck Avenue
White Plains, NY 10605
Web Site: www.marchofdimes.com


MEDLINEplus
MEDLINEplus is an online health information service from the National Library of Medicine, the world's largest medical library. MEDLINEplus has extensive information from the National Institutes of Health and other trusted sources on over 600 diseases and conditions including infertility and fertility-related conditions.

U.S. National Library of Medicine
8600 Rockville Pike
Bethesda, MD 20894
E-mail: custserv@nlm.nih.gov
Web Site: www.medlineplus.gov


Men’s Health Network

The Men's Health Network (MHN) is a non-profit educational organization made up of physicians, researchers, public health workers, individuals and other health professionals. The goal of the organization is to improve the health and well-being of men, boys and families.

Men's Health Network
P.O. Box 75972
Washington D.C. 20013
202-543-6461
Email: info@menshealthnetwork.org
Web Site: www.menshealthnetwork.org


National Adoption Information Clearinghouse

The National Adoption Information Clearinghouse was established by Congress in 1987 to provide free information on all aspects of adoption. The site provides a national adoption directory as well as a wide-range of information about adoption.

National Adoption Information Clearinghouse
330 C Street, SW
Washington, DC 20447
888-251-0075
E-mail: naic@calib.com
Web Site: http://naic.acf.hhs.gov/index.cfm


National Cancer Institute

The National Cancer Institute (NCI) is a component of the National Institutes of Health. NCI conducts and supports research, training, health information dissemination, and other programs with respect to the cause, diagnosis, prevention, and treatment of cancer, rehabilitation from cancer, and the continuing care of cancer patients and the families of cancer patients. The NCI site provides information about cancer including the impact of cancer and cancer treatment on fertility.

NCI Public Inquiries Office
Suite 3036A
6116 Executive Boulevard, MSC8322
Bethesda, MD 20892-8322
NCI's Cancer Information Service: 800-422-6237
Web Site: www.cancer.gov


National Center for Education in Maternal and Child Health
The National Center for Education in Maternal and Child Health provides national leadership to the maternal and child health community in three key areas--program development, education, and state-of-the-art knowledge--to improve the health and well-being of the nation's children and families. The center is part of Georgetown University.

National Center for Education in Maternal and Child
2115 Wisconsin Avenue, N.W.
Washington, DC 200007
202-784-9770
Email: mchlibrary@ncemch.org
Web Site: www.ncemch.org/default.html


National Institute of Allergy and Infectious Diseases

The National Institute of Allergy and Infectious Diseases (NIAID) is part of the National Institutes of Health. More than 13 million Americans each year acquire infectious diseases other than AIDS through sexual contact. Such STDs as gonorrhea, syphilis, chlamydia, genital herpes, and human papillomavirus can have devastating consequences, particularly for young adults, pregnant women, and newborn babies. The web site provides information about STDs as well as access to the latest research sponsored by NIAID.

NIAID Office of Communications & Public Liaison
Building 31, Room 7A-50
31 Center Drive MSC 2520
Bethesda, MD 20892-2520
301-496-5717
Web Site: www.niaid.nih.gov/default.htm


National Institute of Child Health and Human Development (NICH
D)
Part of the mission of the NICHD is to ensure that every person is born healthy and wanted and that women suffer no harmful effects from the reproductive process. Some NICHD research focuses on learning about the reproductive health of men and women and educating people about reproductive practices.

NICHD Information Resource Center
P.O. Box 3006
Rockville, MD 20847
800-370-2943
E-mail: NICHDInformationResourceCenter@mail.nih.gov
Web Site: www.nichd.nih.gov


The National Organization of Mothers of Twins Clubs
The National Organization of Mothers of Twins Clubs, Inc. promotes the special aspects of child development that relate specifically to multiple-birth children. The organization is a network of some 475 local clubs representing over 21,000 individual parents of multiples.

NOMOTC Executive Office
P.O. Box 438
Thompsons Station, TN 37179
877-540-2200
Email: info@nomotc.org
Web Site: www.nomotc.org


National Organization on Fetal Alcohol Syndrome

NOFAS is a nonprofit organization dedicated to eliminating birth defects caused by alcohol consumption during pregnancy and improving the quality of life for those individuals and families affected. The NOFAS site provides information about the condition, including prevention.

National Organization on Fetal Alcohol Syndrome
900 17th Street, NW
Suite 910
Washington, DC 20006
800-666-6327
Email: information@nofas.org
Web Site: www.nofas.org


National Uterine Fibroids Foundation
The National Uterine Fibroids Foundation is a not-for-profit public benefit corporation organized to engage in charitable, educational, and scientific activities related to the care and treatment of women who have uterine fibroids or related conditions of the reproductive system.

National Uterine Fibroids Foundation
PO Box 9688
Colorado Springs, CO 80932
877-553-6833
Email: info@nuff.org
Web Site: www.nuff.org


National Women's Health Information Center (NWHIC)

The NWHIC provides a gateway to the vast array of Federal and other women's health information resources. The center’s site provides access to a wide variety of women's health-related material developed by the Department of Health and Human Services, other Federal agencies, and private sector resources.

Office on Women's Health
8550 Arlington Blvd.
Suite 300
Fairfax, VA 22031
800-994-WOMAN
Web Site: www.4woman.org


National Women's Health Resource Center
The National Women’s Health Resource Center, Inc. (NWHRC) has helped millions of women educate themselves about the health topics that concern them the most. The non-profit organization, dedicated to helping women make informed decisions about their health, encourages women to embrace healthy lifestyles to promote wellness and prevent disease.

NWHRC
157 Broad Street
Suite 315
Red Bank, NJ 07701
877-986-9472
E-mail: vngethe@healthywomen.org
Web site: www.healthywomen.org


National Women's Health Resource Center—Uterine Health Guide
The NWHRC publishes the Uterine Health Guide, which provides women with basic information, tips, and resources needed to understand and take charge of their uterine health. The guide includes sections on uterine health at each life stage; easy reference charts for recommended gynecologic checkups and screening guidelines; a discussion of common uterine conditions, such as adhesions and fibroids, and the latest treatment options for these conditions.
More…


North American Menopause Society
The North American Menopause Society is a nonprofit organization devoted to promoting women's health during midlife and beyond through an understanding of menopause. The site contains information on perimenopause, early menopause, menopause symptoms and long-term health effects of estrogen loss, and a wide variety of therapies to enhance health.

North American Menopause Society
P.O. Box 94527
Cleveland, OH 44101
800-774-5342
Email: info@menopause.org
Web Site: www.menopause.org


Polycystic Ovary Syndrome Association
The Polycystic Ovary Syndrome Association (PCOSA) provides a comprehensive set of resources for information on polycystic ovary syndrome. The organization also provides an advocacy network, including social support, for women with PCOS and their families.

Polycystic Ovarian Syndrome Association
PO Box 3403
Englewood, CO 80111
877-775-7267
Email: info@PCOSupport.org
Web Site: www.pcosupport.org


Premature Ovarian Failure Support Group
The POF Support Group is to offer support and information to women who have been diagnosed with premature ovarian failure. The organization's website contains information designed to help you learn about the condition, stay up to date with the latest research, and to meet and interact with other women through message boards, email lists, and chat rooms.

Premature Ovarian Failure Support Group
PO Box 23643
Alexandria, VA 22304
703-913-4787
Email: membersupport@pofsupport.org
Web Site: www.pofsupport.org


Resolve: The National Fertility Association
RESOLVE: The National Infertility Association, established in 1974, is a non-profit organization with the only established, nationwide network mandated to promote reproductive health and to ensure equal access to all family building options for men and women experiencing infertility or other reproductive disorders. RESOLVE improves the lives of women and men living with infertility.

One in eight U.S. couples of childbearing age is diagnosed with infertility. RESOLVE addresses this public health issue by providing community to these women and men, connecting them with others who can help, empowering them to find resolution and giving voice to their demands for access to all family building options.

RESOLVE: The National Infertility Association
1760 Old Meadow Road, Suite 500
McLean, VA 22102
703-556-7172
E-mail: info@resolve.org
Web Site: www.resolve.org


SHARE Pregnancy and Infant Loss Support, Inc
SHARE is a not-for-profit nondenominational organization providing support to those whose lives are touched by the tragic death of a baby through early pregnancy loss, stillbirth or newborn death. All information packets, correspondence, and support are free of charge for bereaved parents.

National SHARE Office
St. Joseph Health Center
300 First Capitol Drive
St. Charles, Missouri 63301
800-821-6819
Email: share@nationalshareoffice.com
Web Site: www.nationalshareoffice.com


UrologyHealth.org
UrologyHealth.org is a patient information resource developed by the American Urological Association. The content on the site was written and reviewed by urology experts and includes information on issues affecting a man's sexual and reproductive ability.

Last modified on: 30 June 2015


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